October 28, 2022

Hi, Cindy ... Do you want to use my case to push us forward? I could sure do with a better QoL change rather than reviewing my Care Plan constantly, and think mine is now so bad it has reached the Ombudsman via submission by an independant review group I reached out to a few months ago.

As much as I can, I am still trying to reach out as I have (for past 3 years since leaving NN as a patient of yours and Katie Malver) and am still not mobile enough to meet MoH requirements to self manage, get to GPs (as homevisit is too $ or time consuming or no point due to incompassionate nature of GP) as govt / Little sees fit.

In my solitary isolation since arriving only 5 days prior to first lock down and with Bryce leaving less than 6 months later, I've simply been trying to keep myself out of bed with the crippling pain.
I've many coming at me as if crazy now that my degen has made me very wobbly and at worst very parkinsonia.
My own R&A, micronutrient management and prev work skills is what has kept me going through this.
My house has been in 1/2 reno state (which is dangerous considering my disabilities);
car was driven into by a GOVT vehicle and I've been left with it broken and unreliable for 4 months;
no GP will look at me without govt issued judgement and attack my MH (along with simply criticising Katie, Gill Harker, yours and many othe GP diagnosis that I share during consults when trying to find care here);
I get NO home care, physio or aid because I cannot self manage my body to fit within working hours or have to find a friend before I can get care ... aka all roads to my own health are unaided and lay squarely with me;
Any application for compassion to Pharmac via CannabisClinic (my only safe GP and medical care) is taking forever while meantime GOVT are creaming 200-300% off meds while made a major contrib to our new canna industry out valuing the shares many of us put in initially;
The only form of DHB / pho service I get is a very disgruttled Community Social Services because there is only 1x FullTime position for the whole of the region and the DHB have a team of 5-6 who simply assess with negligence;
Last trip to hospital was openly negligent. Left 2hrs so that a young snarky Dr wanted to challenge my disability off a couch by the front entry!
The pressure that is being put on staff is leaving those of use who need action and active physical support is not being provided and simply going around in circles
The truth is in someone like me ...
I rarely go out and when I do it is for needs (like food, slippers or supplement etc) I cannot easily order online.
THis msg is extrutiatingly difficult (hands, eyes, joints etc) but am not being heard or helped here.
My truama from living like this gets used against me constantly as if my fault, problem or not worthy of help or aid.
AMI even have negated to care for their support in obligation to help repair my car and the dealership
I sold my fancy car (the black merc I used to drive up to The Wood to see you in) to put towards new working showers and a spa - that I cannot afford to run now due to increasing costs.
The mini cooper, as said, was driven into and has not been repaired so even if I were to get out, it is playing a game of roulette.
I get an hour or 2 max (as usual) to do what I can to self manage and prepare for the rest of the day.
Doing this for the past 3 years has only disabled me further, yet ensuring I continue to be considered worthy of benefit is proving I cannot work, yet me/cfs is now being put forward as a disability in it's own right when that was my initial diagnosis back dated to early 90's
I am at a loss, need help with my voice, support here is neglible and easily turns back on those of us in even greater compromise.
I live like a shaking chuaua now because I moved here just as 'covid' became a thing and freak everyone else out leaving me to scrabble to survive.
Share me, and if you want when able of course, I can forward my details like email from ombudsman and anything else I have that relates or could help us both.
She's not feeding the slaves eh!!! Its all bu$iness where the true cost is landing on ppl like me, the amputee left in harrassed care and exactly why I am trying to keep myself alive and safe in my own home. Yes, I am scared to go out ....
My only friend here is bit of chat with a neighbour and an occasional chat with Womens Refuge member here.
PS: my sis is having her Pharmac funding pulled so no chemo anymore and poss going into last stages next year if the next option is $11k p.m also
My neighbour is the owners of Healthhouse. I'm currently trying to setup Cannaclinic scripts to Nga Hua pharmacy and register with Manawanui for indep, care but its taking weeks.
This is all my hands have, I'm yours, hoping my GP (Epic ..... epic fail also) & DHB social get onto home visit physio but its been in the chat bowl along with QE Wellness since arriving also.
Am I lucky to be alive? hmmm, am not so sure, hands are seizing and anytime, call or text 021468444 (NHI: cpn4346)
Think of you, Rose and Neil constantly as I look at my supplement regime each morning lol
Alice (old email was [email protected] emails)
I can get to piggledy easier now but phone / txt best still
thanks!

September 24, 2022

A decade ago I had a mild reaction to a flu vaccine. It wasn't so bad that it resulted me being in hospital but bad enough for me to say "no more flu vaccines for me". In 2017 the vaxxed movie came to NZ and the media only said negative things about it yet none of the journalists had even seen it trying to stop all the public to see it. I had seen it twice on the big screen and on DVD where I had seen more interviews than what I saw on the big screen. I had a t shirt that I got from the vaxxed movie and wore it. When my Dad noticed it he said I should be ashamed. Because I had bought that t shirt he said he would never help me pay some of my expensive bills anymore because of how I wasted money on something that was full of lies. I
replied "until you have seen it for yourself you shouldn't be commenting about it" I can also remember before covid the media were going on and on about measles trying to get everyone to take another measles vaccine.
I had seen a video about B Gates lowering the population with........... so I knew from the start of covid that this was going to be a genocide/democide and the virus was nothing to be afraid of. I had had no flu vaccines for a decade and no flu either. What is making people sick and fat is the addictive carbohydrates and the trans fat seed oils and the over dosage of medication and the evil needles they want to force us to take. I still don't understand how people can still believe the government is about health.
When we were a child we had only one measles jab to last a lifetime, one flu jab to last the season, it is unapproved except in emergency, still only an experiment, coercion to get you to take it, bribery to get your kids to take it, won't have a control group, having booster after booster and you can still get the virus, if this can not send you a red flag what will?

"You don't need to do anything to get better; all you need to do is stop doing what's wrong and making you sick. Ulric Williams"


Amanda, epileptic rebel

September 21, 2022

The way we have been so divided because of this government is heart breaking. I have always felt divided already because of me being the only epileptic in the family, the only one in my family that didn't get to finish school so felt already quite segregated. I am the only one against the tyranny and mandates. I have endured bullying, lies, name calling, told by my family I should be ashamed, I am selfish. I can't visit my family because I haven't had a jab. It is extremely sad that I couldn't even see my Dad when he was still alive. I was allowed to be at his funeral though. That is not the same. My Dad would call me if he knew I was at a supermarket without a mask and tell me I should be ashamed for not wearing one. Now that he is in a better place hopefully he can see who I really am and be proud of me for being someone who wouldn't tolerate government lies that unfortunately the rest of them fell for.

September 21, 2022

The way we have been so divided because of this government is heart breaking. I have always felt divided already because of me being the only epileptic in the family, the only one in my family that didn't get to finish school so felt already quite segregated. I am the only one against the tyranny and mandates. I have endured bullying, lies, name calling, told by my family I should be ashamed, I am selfish. I can't visit my family because I haven't had a jab. It is extremely sad that I couldn't even see my Dad when he was still alive. I was allowed to be at his funeral though. That is not the same. My Dad would call me if he knew I was at a supermarket without a mask and tell me I should be ashamed for not wearing one. Now that he is in a better place hopefully he can see who I really am and be proud of me for being someone who wouldn't tolerate government lies that unfortunately the rest of them fell for.

September 21, 2022

We have been lied to about many things regarding health, whether it be nutrition, cholesterol, fluoride in our water and many more but my focus will be about nutrition because of how much I have read about it and seen the success stories of so many people going in the same direction as low carb high fat the opposite of what advice I was given from the health service. I was told I could eat whatever processed junk I like so long as it had less than 20% sugar, less than 10% total fat and less than 5% saturated fat and kept my calories low. I am now drinking distilled water and if that was really going to rob my body of the nutrients I needed I should be crippled by now. I get all the nutrients I need from my food and lots of those foods also contain cholesterol I might add. If those foods were going to be bad for me why are my triglycerides now so low? The vegetables I eat are mostly what grew above the ground. If your so called "healthy whole grains" were really an important part of my diet why am I not dead yet? Wheat and sugar are the worst foods you can put in your body. Two slices of whole wheat bread can raise your blood sugar even worse than 2 tablespoons of sugar can. The wheat you are eating today is far from the wheat your grandmother ate. If it didn't exist before supermarkets existed don't eat it. If it is advertised don't eat/drink it.
Eat mostly from the perimeter of the supermarket where you will find fresh foods. You have the choice to either pay the farmer now or the doctor later. Don't buy low fat foods because the lower the fat the higher the sugar. Sugar has done the damage not saturated fat. Don't blame the salt for what the sugar did. Don't blame cholesterol for what inflammation did. Don't blame butter for what the bread did. Time to ditch all these high carb foods since they have only appeared on the shelf since supermarkets allowed them on the shelf. Don't use the "vegetable oils" you have been told to use. They don't even exist! You have fruit oils avocado, olive and coconut oil which are good for you and seed oils which are terrible for you because of the amount of processing that they take to make them. Do not be afraid of cholesterol or saturated fat. Your grandparents never cut the fat off their meat and they weren't obese. What you eat can be either your best medicine or your slowest form of poison. Let food be thy medicine!

September 14, 2022

Hi there

My 16 year old son has been struggling with Vertigo type symptoms since February of this year. In May he came to me due to deformity with his chest and is now under investigation for spontaneous onset of Marfan Syndrome.

He was an active healthy young man before and has had to stop sport and has missed so much schooling this year due to being unwell. We have yet to see a specialist to firmly diagnose him and tell us what is wrong with him. ORL have ruled out Vertigo.

I thought to email yourselves in case this is something you have come across since vaccinations. He received his second vaccine dose in November of last year due to mandates, etc. We have not had any further boosters or vaccinations since.

I am happy to discuss in detail further if you wish, just giving a brief summary for now on the off chance this may be vaccine related.

Load More